Whew.
I have really enjoyed writing my more personal posts recently– I love to tell a good story, and to feel as though my past experiences have some meaning. (And I’ve really appreciated all your kind words, comments, and shares!).
But also, wow– some of those posts were very emotional for me. Right now I’m kind of feeling the need to come up for some air.
So let me back up for just for a minute, and talk about some of the things I’m optimistic about, in terms of the big picture in treating chronic pain.
The more we know about central sensitization and the way pain works:
It gives us the power to name things.
This is something I’ve been thinking a lot about recently. Sometimes, there is a healing power that comes just from being able to put a name to something; to receive a diagnosis, and know that you aren’t the only one.
As I explained in my last post, when I finally learned the term central sensitization, it helped me to feel validated, and so much less alone.
Sometimes healing can come not from completely “fixing” your condition, but from being able to make meaning out of it for yourself; constructing a coherent narrative that makes sense.
And of course, it’s much easier to make sense out of something when you actually know what it is.
Having an actual diagnosis can help us explain ourselves to others
At least, I assume it does.
As I have mentioned in past posts, the truth is that I have often struggled to articulate what’s happened to me in the people in my life.
Of course, it didn’t help that I didn’t really have an explanation that made sense for it myself, for most of the time, or that even now that I have an explanation, it’s a condition that’s still fairly unknown.
This is why I am doing my best to raise awareness and get the word out.
The more we, as a society, understand about pain, the more treatments we can develop.
There is just so much to say here. The more I learn about pain, the more and more I realize I don’t know. It’s really such a fascinating subject. I try to talk about some of the highlights on my blog, just to give you a sense of how broad the subject really is.
But in a nutshell, our growing scientific understanding of pain can lead us to all sorts of new treatments, such as:
New pharmacological approaches: I’ve recently discovered Gracie Gean’s Youtube channel, and her story about receiving ketamine infusions to treat CRPS. I totally recommend checking it out!
Brain imaging and biofeedback: I’ve written before about the work of Christopher deCharms and others at Stanford University, who use functional MRI to teach patients to mentally “turn the volume down” on their pain.
Pain neurophysiology education
And of course, once you understand that pain is one of your body’s protective responses– it’s actually there to keep you safe, not make you miserable– this can help you learn to work with it, not against it.
This is the premise of pain neurophysiology education, which I talk about in the “Calming Your Nervous System” section of my blog.
When I was in the midst of my struggle, I happened to find a physical therapist who had taken a PNE course with Neil Pearson, and that was the moment things really changed for me.
I learned to view my pain not as an automatic indicator that something was wrong or broken in my body, but as my body’s attempts to protect me. And, each time something hurt, it was possible my body was overreacting, like a jumpy alarm system, or an overprotective friend.
This helped me to mentally take a step back when things began to hurt, and re-evaluate what I intellectually thought the pain was likely to mean. And even just realizing that I had the ability to do this– that pain didn’t always have to mean something was wrong– helped me to begin to end the cycle I’d been caught in.
So, that’s all for now.
I’ve got a bunch of posts planned for the next few weeks that I’m really excited about.
I’ve also recorded a podcast interview with Matthew Villegas for The Capable Body Podcast about my experience with pain neurophysiology education. Although I was afraid I sounded super awkward, Matt assures me the episode will be good! It should be coming out sometime in September– I’ll be sure to let you know when it does.
Stay tuned!
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