Well, this has certainly been a strange year for me and weird medical problems (may I remind you of my one week of temporary paralysis, following a chiropractor visit back in May). It turns out that, apparently, my last post announcing that I'd been diagnosed with mast cell activation syndrome may have been a bit … Continue reading Piecing it together
If you follow my Facebook page, you may have already seen the news... Yesterday I was diagnosed with something called mast cell activation syndrome. It's taken me a long time to figure out what's been going on. It all started with a severe allergic reaction back in August. Unlike most people who experience a severe … Continue reading I didn’t need one more thing to write about.
Hi everyone! Wow... I have so many things to write about (yay!). I've really been enjoying making connections with all of you, and seeing that my writing will resonate with people even if I write about topics I'm not sure anyone will care about. (My last post about my how I don't deal with heat well went … Continue reading Be kind to yourself, meditate, and “eat the rainbow”– some straightforward advice from my new doctor :)
Hi! So.. I try to keep the posts on my blog mostly cheerful. I always want my blog to be a place that reflects a sense of hope and healing, where people can come to feel uplifted. But... I also blog to share my truth with people, and to connect. And the truth is that … Continue reading Heat, Fibromyalgia, & Central Sensitivity Syndrome (or, why I can’t handle being hot!).
Hi everyone! I recently heard from a reader who was looking for some suggestions on where to turn next, in terms of finding a medical professional to help him. He said he'd been struggling with central sensitization syndrome for three years now, and had yet to receive any significant help. I thought his advice might … Continue reading How to find help for Central Sensitization
Wow... the past few months have been full of changes for me! There's been a lot to deal with... but at the same time, I've been learning from it, and figuring a lot out. I don't always feel inspired to share super personal stuff on this blog, but I've heard from a few readers -- … Continue reading So, I think I *do* have fibromyalgia, after all.
Hi everyone! So... I wanted to follow up my recent posts, which have been somewhat heavy, with a post to check in about some of the good things going on in my life! I've always wanted to try doing one of those Friday round-up posts so many bloggers do, so I thought I'd give this … Continue reading Friday round-up: swimming outside, meditation, and coffee shops
Sometimes I just can't believe the personal details I put online. To be honest, I think that's why I don't work on this blog as often as My Sacroiliac Joint Saga. It's super easy to provide people with factual information, with only a few personal tidbits thrown in. This blog, though? This is the one … Continue reading Why I fired my primary care doctor after 10+ years.
Well, if there's anything I can say I learned last week week (in addition to chiropractors are dangerous), it's this: How very, very grateful I am not to have a permanent nerve injury. I guess that's sort of the obvious thing for anyone to say in this situation. But what really surprised me was that … Continue reading Grateful to be okay
Hi everyone! Today I wanted to share with you this post from my friend Clare over at Jelly-Like Joints. Clare is a science-lover and "bookish crafter" --a book lover who also enjoys arts and crafts. She was born with a genetic condition that affects her connective tissues. This causes her to have hypermobile joints, along … Continue reading When the going gets tough, the tough start researching…