Wow... the past few months have been full of changes for me! There's been a lot to deal with... but at the same time, I've been learning from it, and figuring a lot out. I don't always feel inspired to share super personal stuff on this blog, but I've heard from a few readers -- … Continue reading So, I think I *do* have fibromyalgia, after all.
Sometimes I just can't believe the personal details I put online. To be honest, I think that's why I don't work on this blog as often as My Sacroiliac Joint Saga. It's super easy to provide people with factual information, with only a few personal tidbits thrown in. This blog, though? This is the one … Continue reading Why I fired my primary care doctor after 10+ years.
I wanted to share a really important post with you all this morning, from the author of Chronically Undiagnosed. She's a therapist who is dealing with chronic illness. Recently, she wrote about her experience attending a chronic pain support group that incorporated some of the theories of modern pain science... but did so very badly. … Continue reading Too much of a good thing: when people don’t really *get* pain science
https://www.youtube.com/watch?v=CJsuZFteWHI Okay. I've really been looking forward to publishing this post. Here, we're revisiting the same great talk by pain physician Dr. Jay Joshi. In my last post, I outlined what Dr. Joshi says are the four main categories of pain. Central sensitization is the type that is, unfortunately, the least understood. And it's also … Continue reading Pain is like Memory: Dr. Jay Joshi on Central Sensitization
https://www.youtube.com/watch?v=CJsuZFteWHI Hi everyone! I've just discovered this awesome talk on central sensitization by pain management physician Dr. Jay Joshi. It's totally packed with information I want to share with you all-- such as why it's so hard to get help for central sensitization, and how ketamine infusion treatments can help. There's so much here, though, that I thought … Continue reading The Four Categories of Pain– Dr. Jay Joshi
https://www.youtube.com/watch?v=jtc2JARVpPw Hi everyone! Here's an amazing lecture from Dr. Sean Mackey of Stanford University on the various potential causes of fibromyalgia. On my blog, I tend to focus on the factor that I know has played the largest role most directly in my own life-- central sensitization. The idea that central nervous system can become … Continue reading Dr. Sean Mackey on a potential reason for chronic pain
Okay, so here’s the story of the time I thought I’d found the right person to help me, which of course, made it all the more disappointing when it didn’t turn out to be the case. In telling my story, I’m choosing to gloss over every little ache and pain I had; every time I … Continue reading The doctor who *almost* helped me (How I developed central sensitization, Part 6)
As I try to get braver about sharing this blog with the people in my everyday life (it's been relatively secret up until now), I want to be sure I'm clear about the fact that there are absolutely still days when I'm in pain. The purpose of my blog is not to tell you I've … Continue reading What’s in my chronic pain toolkit?
A little over a year ago, I started a second blog to focus on what I'd come to think of as this weird hip problem I'd had for years that no one seemed to understand (sacroiliac joint dysfunction). Among friends, I usually tried not to talk about it too much, because I didn't think anyone … Continue reading Healing our bodies, and the things that ripple across generations
When I first started this blog, I was angry. I never wrote about it, because I didn’t want to bring people down, but I was sick and tired of trying to explain my health issues to the people in my life, and feeling like they didn’t believe me. Maybe you can’t see the anger, because … Continue reading Being okay with uncertainty