If you follow my Facebook page, you may have already seen the news... Yesterday I was diagnosed with something called mast cell activation syndrome. It's taken me a long time to figure out what's been going on. It all started with a severe allergic reaction back in August. Unlike most people who experience a severe … Continue reading I didn’t need one more thing to write about.
Hi! So.. I try to keep the posts on my blog mostly cheerful. I always want my blog to be a place that reflects a sense of hope and healing, where people can come to feel uplifted. But... I also blog to share my truth with people, and to connect. And the truth is that … Continue reading Heat, Fibromyalgia, & Central Sensitivity Syndrome (or, why I can’t handle being hot!).
Well, if there's anything I can say I learned last week week (in addition to chiropractors are dangerous), it's this: How very, very grateful I am not to have a permanent nerve injury. I guess that's sort of the obvious thing for anyone to say in this situation. But what really surprised me was that … Continue reading Grateful to be okay
I wanted to share a really important post with you all this morning, from the author of Chronically Undiagnosed. She's a therapist who is dealing with chronic illness. Recently, she wrote about her experience attending a chronic pain support group that incorporated some of the theories of modern pain science... but did so very badly. … Continue reading Too much of a good thing: when people don’t really *get* pain science
https://www.youtube.com/watch?v=k8S8XcPt6Bo I've just discovered Rachael Steil's sharing of her story as an elite college runner with an eating disorder. And I've really been blown away, both by her bravery in telling her story, as well as her clear and honest explanations of what she and other people with ED's go through. I still haven't shared … Continue reading Things I’m grateful for: people who are brave enough to tell the stories I’m not
Okay, so here’s the story of the time I thought I’d found the right person to help me, which of course, made it all the more disappointing when it didn’t turn out to be the case. In telling my story, I’m choosing to gloss over every little ache and pain I had; every time I … Continue reading The doctor who *almost* helped me (How I developed central sensitization, Part 6)
A little over a year ago, I started a second blog to focus on what I'd come to think of as this weird hip problem I'd had for years that no one seemed to understand (sacroiliac joint dysfunction). Among friends, I usually tried not to talk about it too much, because I didn't think anyone … Continue reading Healing our bodies, and the things that ripple across generations
When I first started this blog back in 2012, I kept it largely a secret from the people in my life. I wanted to help people struggling with the same things I’d been through, but I was afraid of the consequences of putting so much personal information online. After all, wasn’t putting a long list … Continue reading Maybe my weaknesses aren’t weaknesses. Maybe they are strengths.
For a few years, I was stuck: caught between all of the doctors I saw, who thought there was something wrong with me psychologically, and the fact that deep inside of me was a calm, inner voice that knew it just wasn’t true. *** Feeling as though I'd run out of other options, I became … Continue reading How I developed central sensitization: Part 5
Whew. I have really enjoyed writing my more personal posts recently-- I love to tell a good story, and to feel as though my past experiences have some meaning. (And I've really appreciated all your kind words, comments, and shares!). But also, wow-- some of those posts were very emotional for me. Right now I’m … Continue reading Learning about central sensitization: the power of naming, and the future of pain treatment