Things you can ask me about

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Something you might not know is that I spend a lot of time answering emails from readers looking for advice on their own health issues.  I do my best to offer advice and get people pointed in the right direction.  It means a lot to me to feel as though my experience has served a purpose, and that some good can come out of what I’ve been through.

I’ve been meaning to write some more personal posts telling about my stories with various running injuries, compartment syndrome, etc.

However, in the meantime, I thought I would just offer this general list of health conditions I feel I can offer some advice on.

I want to be clear about the fact that I do not currently possess any medical certifications.  But I can offer you advice as a fellow chronic pain sufferer and as a friend.  (And my physical therapy prerequisites mean I have a better understanding of medical terminology than the average person).

Basically, what I can do is relay lessons from my own experience to help try to get you pointed in the right direction, and help you try to find the right people who do have the necessary certifications to help you.

Some of the conditions I’ve listed below are actually not things I’ve experienced personally– they are either topics I’ve become knowledgeable about through the course of my own research, or health conditions experienced by my own family members/friends.  (I enjoy helping people, so I tend to naturally fall into the role of “coach”).

So, with that being said, here is a general list, with links to my writing or further resources when relevant:

Chronic pain/central sensitization

Fibromyalgia (physical & mental symptoms)

Sacroiliac joint dysfunction

CRPS

Biomechanics (how to set up your life better to reduce pain)

Running injuries (muscle strains, shin splints, etc.)

Compartment syndrome

Chondromalacia patella

Ovarian cysts/ovarian torsion/abdominal surgery

Pelvic pain/pelvic floor disorders

Digestive problems (irritable bowel syndrome, fibromyalgia-related, various tests you can ask your doctor for)

Aquatic therapy

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Because I am not a medical professional, there is a limit to the extent I will be able to provide support.  I will let you know when there is a question I do not feel qualified to answer.  Really, my goal here is to help you determine your next step, and help you get moving on your way again.  And it means a lot to me to be able to do so.

You can email me at sunlightinwinter12@hotmail.com, or check out the rest of my contact info.

Hope to hear from you!

Start out slowly. It’s normal to be stiff in the morning.

If you have any kind of injury, muscle strain, or chronic pain, don’t be surprised if you wake up in more pain than you were in when you went to bed.  Everyone is a little bit more stiff in the morning from lying still all night long.  You just might not notice it until you have some kind of pulled muscle or other issue that’s causing pain and inflammation.

To top things off, the discomfort of morning aches and pains is going to be magnified if you have a heightened sensitivity to pain, which sometimes happens to people who have been through a traumatic physical experience.  (I’ve written more on that here).  When you combine these two things, the first few hours of the day can be excruciating.

If you notice increased pain and stiffness in the morning, I suggest you plan your days to leave yourself extra time in the morning.  I know this is sometimes easier said than done, but it really can make all the difference in affecting the overall quality of your day.

If you have time to go through the movements of getting ready for the day at a gradual pace, it will help you to slowly loosen up.  Little movements, like getting out of bed, brushing your teeth, and making breakfast will all help warm your muscles up and flush out any extra fluid that’s built up overnight.

You might find that there are certain things you can’t do when you first wake up, like bending down and pick something up off the floor, or reaching a mug on the highest shelf in the kitchen.  But if you keep getting ready for the day with small, gentle movements, you might find that after half an hour, some of your flexibility has returned.

In comparison, if you try to rush your body through motions that it’s not quite ready to perform, you’ll just be yanking on those stiff muscles and your nervous system will let you know that it is not pleased.  You might technically be ready to leave the house sooner, but you will be experiencing a lot more pain and discomfort than if you had just taken your time.  Trust me; there have definitely been times when I’ve chosen to sleep in instead of getting up early enough to take my time to get ready.  The first few hours of those days ended up being miserable.

The Pain Clinic

I once had the opportunity to attend a pain management clinic run by a prestigious rehabilitation hospital in Boston, and it was a total bust.

I recently had a conversation with my neighbor Carolyn about my terrible experience there.  She’s had problems with one of her shoulders for years, and she mentioned that she was currently on the waiting list for the same place.

Judging by the wistful tone in her voice, I could tell Carolyn’s doctor had built up her expectations of the pain clinic just as much as mine had.  She explained how the waiting list was months long, and how she was scared she’d never be able to get in.  Suddenly I understood what my doctor had meant when she said she’d had to pull some strings to get me through the door.

I told Carolyn not to worry if she couldn’t get in; she wouldn’t be missing too much.  She looked confused.  “But my doctor said there’s no other place like it around here,” she said.

“Yes…” I replied, choosing my words carefully.  Apparently I had to be the one to initiate Carolyn into the depressing world of trying to get help for chronic pain.  “The sad thing is, that doesn’t mean this place is any good.”

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Before I go on, I should probably back up and explain a little bit about how I ended up needing to go to a pain clinic.

Two years earlier, I threw my back out.   In a bad way.  I will talk about it more in another post, but suffice it to say, my back was wracked with muscle spasms.  The whole thing hurt, from my neck, to my shoulder blades, to the base of my spine.  Some days I couldn’t even raise my arms above shoulder level.  My doctor called it “glass back syndrome” because I was so fragile I could hardly even stand to be touched.

During the first few months after I hurt my back, I found the best thing I could do for the pain was to take walks.  This was particularly important in the morning: when I first got out of bed, I was so stiff that I could hardly move.  I would stumble out of bed and pace up and down the hallway of my dorm for about five minutes. This got me to the point where I was loosened up enough to put on warm clothes and my coat.  At this point I would head outside for a twenty-minute walk around campus.  Only afterwards would I feel human enough to deal with brushing my teeth, breakfast, and everything else.

I was eventually to get my back pain somewhat under control, through a combination of exercises and medications that dulled the pain enough for me to be able to exercise.   But the pain never completely left me, and I spent the next two years trying to be free of it.  I had MRI’s.  I had trigger point injections.  I tried physical therapy at numerous different facilities.  Nothing seemed to work.

After about two years, my doctor said she wanted to refer me to the pain clinic.  She explained that she had done her residency in pain management at the same hospital, and couldn’t recommend it highly enough.  I was thrilled and agreed optimistically to go.

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I started at the pain clinic in the summer of 2006.  The session was supposed to run for six weeks, four days a week. The day was broken up into 45-minute blocks that were set by a predetermined schedule, and I was one of twelve chronic pain patients who would be doing everything as a group.

On paper, the clinic sounded great: the brochure I found in the lobby said there would be classes on meditation, ergonomics, and pain relief.  Patients would have the opportunity to work out in the gym twice a day under the supervision of physical therapists.  We would be given the chance to try yoga, tai chi, and biofeedback.  And finally, we would also have the opportunity to meet with a physiatrist and a psychologist.  It sounded absolutely amazing.

And how did it go?  Well, most of my experiences there were neutral.  I met with the physiatrist, but he said pretty much the same things as my own doctor.  (This made sense, since he had been one of the doctors to train her).  I met with the psychologist, who didn’t really say anything helpful, but didn’t manage to offend me either.  Anyone who’s read my post on the problems I have with yoga knows how that part turned out.  I did enjoy the tai chi, however.

Biofeedback was sort of interesting, but it doesn’t really accomplish anything when you only try it once for fifteen minutes.  I’ve actually done biofeedback in physical therapy since then, and I feel confident in saying that it takes several 45-minute office visits to really even begin to know what you’re doing.

I actually enjoyed the part about ergonomics, or how to set up your home and workplace to allow you to do things in the proper anatomical position.  That was actually helpful, and I still think about some of that stuff today.  With that being said, any physical therapist can teach you how to set up your workstation.  You don’t need to attend a six-week program.

The best part of the clinic was actually the time I spent hanging out with the other pain patients.  We got each other.  Lunch, when we all sat outside at picnic tables in the sun, was the most fun part of the day.

There was aspect of the clinic, however that was just so horrible that it pretty much overshadowed everything else.

We had two 45-minute sessions in the gym each day.  One was at the beginning of the day at 10 am, the other was at 2 pm.  You were supposed to use one of the sessions for cardiovascular exercise, and one for weight training and other exercises.  I ended up getting into a stand-off with the head physical therapist over the fact that I also wanted to do a short cardiovascular warm-up before I lifted any weights.

Now I might be about to go on a bit of a tangent, but I have a very big problem with the concept of doing any kind of weight-training or other serious exercise without doing a warm-up first.

It’s common knowledge that doing a gentle warm-up at the beginning of your workout both improves performance and reduces the risk of injury.

With this in mind, there was no way I was going to do my exercises at the clinic without a warm-up.  I explained to the physical therapist at the beginning of my “weight-lifting” session why I was walking on the treadmill.  She didn’t really respond so figured it was fine.

A few days later, however, the same person took me aside and demanded to know why I wasn’t doing my strengthening exercises.  She spoke in an angry tone of voice, as if this was some sort of personal conflict between the two of us.  I was completely bewildered.  Her anger was totally out of left field.

I tried my best to smooth things over by explaining what I was doing.  She calmed down slightly when she realized I wasn’t intentionally skipping my exercises, but still tried to talk me into skipping my warm-up. “You won’t have time to get to all of your exercises if you do a warm-up,” she said.  “You have to do all of the exercises on your chart at least once a day.”

This was news to me.  I thought these were just things we were supposed to try.  I didn’t think I was at the point where I was strong enough to do all of those exercises in one day anyway– especially if I wasn’t going to be allowed a warm-up.

Neither one of us wanted to give in, and things were getting more and more awkward by the second.  All of the other patients in the gym had noticed the physical therapist’s angry tone of voice, and were watching.  I wished I could just agree to do what she wanted, but I knew it wasn’t physically possible.

We eventually compromised, agreeing that I would only spend the first five minutes of the weight-lifting session doing my warm-up rather than the ten or fifteen I would have preferred.  I was slightly uncomfortable with this short amount of time but it was close enough, and it wasn’t worth the argument.

But wow.

I had thought a pain clinic was the one place where someone wouldn’t give me a hard time about the things I needed to do for my body.

Every day the staff gave us little lessons on “self-empowerment.”  These were supposed to be about how we could articulate our needs and stand up for ourselves when the people in our lives were pressuring us to do things that would worsen our pain.  And here I was, having to defend my need to do a warm-up before a workout to a member of their staff.

A better approach would have been for her to be flexible, to ask me to tell her more about why I felt walking was so important.  It could have been an opportunity for a conversation in which we could talk about my fears and anxieties regarding exercise. If she thought I had my facts wrong, she could have taken that as a chance to impart valuable information.  I mean, this was a pain clinic; I was there because I had trouble doing things normally.  She should have been trying to understand what caused my pain, not getting into an argument with me about what I did and didn’t feel.

This physical therapist’s lack of personal skills aside, who in their right mind would ask a group of chronic pain patients to skip warming up before exercise?  Many of the other patients were obese, and looked as though they hadn’t exercised in years. If anyone was likely to injure themselves during exercise, it was this group.  Proper exercise protocol shouldn’t have been something I had to beg for; it should have been part of what they were teaching at the clinic.

The next few days were pretty awkward.  I stuck to only using the treadmill for five minutes, but even so the physical therapist would walk over from time to time to check the timer on the treadmill.   I could tell she was just waiting to catch me going over the five minute mark.

Fortunately I didn’t have to deal with this situation for more than a few days.  I went on vacation to Virginia during the third week of the clinic, and while I was down there I got a voicemail from the physical therapist saying I’d been discharged for having missed too many days.  I was a little bit surprised, because I’d given some other staff members the dates for my vacation during my intake appointment and they’d said it wouldn’t be a problem.

I mean, this was a six-week clinic that ran through July and August—what did they expect?  I wondered if maybe they’d forgotten what I told them.

The physical therapist’s message said I could call back if I had any questions.  I interpreted this to mean that if I was really upset about it, I could call back and beg and they would probably let me back in.

I thought about it for a few minutes.  Then I deleted the voicemail.

That was that—sometimes you have to know when to let things go.  No matter how good it looked on paper, that place wasn’t working for me.  I was just relieved to have a graceful way out.